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Old 10-11-2012, 08:11 AM
art chick art chick is offline
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Join Date: Apr 2010
Posts: 132
10 yr Member
art chick art chick is offline
Member
 
Join Date: Apr 2010
Posts: 132
10 yr Member
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Yes! When my negative inspiratory force (or NIF) is down, I say that it feels like I am in a steam room. I have not heard anyone else describe it this way. It turns out that my lower lung lobes have diminished breath sounds during these times too...when someone checks them. Oh! And that seems to correspond to my vital capacity being low.

Have you had your pulmonary function tests done in a booth? If you can get them done, the most impt ones are the diaphragm tests. Some places will even conduct them lying down and sitting up to show the difference in function or even before and about an hour after mestinon. My function was so dramatically better after mestinon, my neuro said it was akin to a positive tensilon test and for seronegative MG, that is priceless!

Also, I have severe and progressive hearing loss. What is happening with your hearing?

debra
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