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Old 10-12-2012, 03:42 PM
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Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
restorativepose restorativepose is offline
Junior Member
restorativepose's Avatar
 
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
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Thanks for the pointed questions Annie.

The sfemg was done on my forearm only. I'd stopped mestinon four days prior.

I have seen a neuro opth, Dr Lee at the U. He was examining for MS. The visit didn't go well...he interrupted me a lot.

Each neuro that I've seen has wished me luck and sent me on without a dx. I'm not married to MG, but the response to mestinon is the only thing I have to go on.

I've had a cardiopulmonary workup, and the pulmonologist said "could be representative of a neuromuscular disorder". That was his last note too.

I don't have a frank ptosis. One lid droops more and I have blurry vision due to the eye muscles being weak.

As for the mg antibodies, they've been tested twice so far. I'm sure they will be tested again over time.
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37yo, clinically diagnosed MG Aug 2012
Started Mestinon June 2012
*mestinon my wonder drug!*
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