I have had two tests done, one by the head of Neurological testing at our local major hospital, the second by a specialist at Johns Hopkins. Both said there is nothing to be gained by further testing, my neuro went so far as to say she would be taking my money under false pretenses- there is no treatment and they expect the results to show deterioration since I have CMT.

I know that some people with CMT continue to be closely observed by their doctors, but these two stand at the top of their specialty in neuromuscular medicine and I am just as happy not to be seeing anyone other than my PCP. I was hurt at first by what I perceived as rejection, but what they said was true.

CMT makes one particulately susceptible to cold, so that may have something to do with the heat lamp.