This neurologist (which I nicknamed at some point-SFEMG neuro.) is one of the best EMGist. So, when he failed to demonstrate my NMJ transmission deficit, there was no one else he could send me to.

In fact I did have a very diagnostic SFEMG by someone else, but I didn't trust those results. I much more trusted his. ( I always wanted to know the truth not have some artifact test result) .

Clinically, he was sure I had MG and even treated me for it. But, he never felt comfortable about this diagnosis and constantly questioned it because of my relatively unusual clinical course (and response to treatment), negative antibodies (my MUSK antibodies were found later) and repeatedly normal EMGs.

He made every possible effort (including coming late in the evening) to obtain a diagnostic EMG. He even did an RNS of my diaphragm (as my most prominent symptoms were respiratory). I can understand that it was very hard for him to accept the fact that this test he was so proud of being so skilled in (and no doubt that he is) was not as infallible as he was made to think.

I do give him a lot of credit for being ready to discuss it. (we had numerous e-mails in which I patiently made my point and he made his and like I said I think we both learned from it. I definitely did).

I also give him a lot of credit for sending me that abstract, which showed that possibly I was correct. (even though he is an MG expert and I am just a patient).

I forgive him for deciding at some point that there is nothing more he can do for me and letting me deal on my own with severe respiratory difficulties while telling my pulmonologists (who fortunately seriously questioned it) that there is nothing physically wrong with me.