Thanks Loisba and GaBelle1. It's going to be great to be a part of this group!!!

I started with the Mestinon when I was diagnosed in '98. Had the thymectomy in '99 and the symptoms got worse so they also put me on 50mg of Prednisone. Gained a massive 100+ lbs over the 2 years that I was on before they finally started to wean me. Lost the weight, and things were great for a few years. Even had a gym membership.

In '03 I ended up with the more severe symptoms again that the Mestinon couldn't control. Double vision, droopy eye, depth perception, slurred speech, chewing difficulties..etc. Was sent to a neuro specialist 3 hours away and he arranged for IVIG. A few treatments helped. Was ALMOST as good as the Tensilon Also put me on Imuran. But after 8 months I ended up with white blood count at 2 and extremely anemic (67). I thought I just wasn't getting over a flu! So they admitted me to the hospital and pumped me full of 3 units of whole blood and discontinued tbe Imuran. Thngs got good again for a couple of years.

Went through Chemo in summer of '06. No problems with the MG during that time. Then went back to work in December and everything fell apart. Ended up going on a leave in mid-Feb. Couldn't hardly see or see where I was going. And talking coherently just wasn't happening.

Currently taking 180 mg of Mestinon every 3 hours. Yes - an extreme amount I know. Timespan at night. I'm developing an iron stomach! Doing IVIG every month as well, but it doesn't have the relief of symptoms that it did when like the first few times I had it done. Symptoms now are as severe as I've ever had. Now the voice just doesn't work for more than 3 minutes, and I have choked on swallowing the Mestinon many times and had the water come out the nose. Ick. From a gym membership to not even being able to hold a full glass at times. And just always exhausted and winded doing the simpliest little things. Eghads!

So to try to resume a life - now the cellcept. Apparently the rumor is that people have had good results with it. It's just such a long wait until you start to notice results. And I'm not sure what kind of doses people are on. And if they combine it with corticosteriods as well. I've always taken Mestinon in some dosage from the time I was diagnosed.

Does that kind of fill in the missing blanks? I didn't really want to bore everybody will the long story. But that's kinda 'me' in a nutshell. I know I can be fixed again. Just like humpty dumpty....only with more glue

Thanks you all again,

Lydia