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Originally Posted by vasilea
I've just been diagnosed with a rare autoimmune disorder called hashimotos encephalopathy. It means the thyroid antibodies a0lso attack the brain. Started immunosuppressant ssteroid, prednisone tappered down. Next is plasmapheresis. Does anyone have knowledge of my diagnosis or of plasmapheresis?
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They are trying a lot of different kinds of treatment for HE these days. In addition to steroids, there are various steroid-sparing medications they can use to help avoid the side-effects of steroids. But you usually need to get brought back to somewhere near base line through initial aggressive treatment of either IV steroids, or plasmapheresis.
Best of luck.