Junior Member
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Join Date: Oct 2012
Location: Pacific NorthWest
Posts: 16
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Junior Member
Join Date: Oct 2012
Location: Pacific NorthWest
Posts: 16
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CIDP? IVIG? - ok read up on that.
You may be onto something there. When they did the spinal tap they only told me they were looking for signs of a virus, or similar - nothing about antibodies. Also, they did not do an EMG, nor said nothing about a nerve biopsy. I do not have any of the facial/voice/breathing symptoms, but have every hand/leg one I found - describes my condition to a T.
I'm going to take this info to my Dr next visit (next week) and demand to know why these were not considered - I've already have a pending question out to him about both outpatient OT/PT and whether we've come to the time to consult a real PN specialist because the team at UofW medical center suck.
/Bob
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