Hi. So sorry this is happening. I have a daughter with crps as well. It is so hard to watch your child go through this. Check out rsdsa.org. There is a lot of information and resources there. Also, Dr. Sherry at Children's Hospital of Philadelphia. He has a program dedicated to children with conditions like this. I know there is quite a waiting list, but I have spoken with them and they were able to give me the names of other places closer to me. Or maybe your pt and doctor could contact them and find out what the correct protocol is for treatment (definitely not ice).
Hope this helps.