I think everyone with this condition feels lonely in some way or another. I think people distance themselves because they don't understand and can't psychically do anything to help you to feel better. In my experiences people will tell you all these things you need to do and when they don't work they just figure you're not really doing it. I've heard everything from family and friends. If I become a vegetarian or eliminate white bread, flour and pasta from my diet. The most outrageous one was from someone who wanted me to go to a past life regression therapist because my pain is caused from traumas in a past life. Everyone thinks they know what I should do and I've tried some of them but some are seriously ridiculous. It's seems like it easier for people to judge then just be supportive.