We all lose hope and motivation and some stage, and like you I am virtually housebound so it's probably worse for us. after fighting to get help finding the un/misdaignosed here for 18months and only my own MP joining in, in May I got a letter from my future King stating he was to busy to help.
I've never felt so low, if The Prince of Wales doesn't care about 250,000 of his people why should a stupid old man. To my shame I gave up for a couple of months I was so low I could have walked under a snakes belly.
One day my wife told me that since it spread to both legs my granddaughter has been breaking down crying in school and having nightmares, they hadn't wanted to tell me because they thought I had enough to deal with.
Right there and then I was disgusted with myself and vowed to fight to my very last breath and if I was going to fight the UK goverment I might as well fight the whole world becuase there must be 10,s if not 100,s of millions of un/misdaignosed out there.
For the last 6 weeks I have been working on a project which should be ready to go by end of next week. Two of the top uS Sites have agreed to help get it out and I have asked the webmaster here to join in but that won't be enough I will be asking everyone on the forum to get involved.
Hopefully when you see it, it will motivate you to join in and give you hope for the future