Gina,

Welcome to the forum; sorry we had to meet this way.

But as the others said, it is a good place to come to for support and information on CRPS. Which is possibly one of the most misunderstood conditions in the human body.

As for treatment, what you're getting and from WHO is very important. It took me a half dozen doctors before I settled on my primary CRPS physician (a podiatrist as I have it in the foot) who actually knew a fair amount about CRPS. Many doctors gave me the "doe in the headlight" look when I told them I had CRPS. So you thank them for their time and you move on to the next one. You need to specifically ask any professional you are seeing "how much experience have you had with CRPS?"

Others on my TEAM include a physical therapist, pain management doctor, chiropractor, general practitioner and sometimes a massage therapist.

Don't forget about your mental health too. Depression is extremely common for those of us with CRPS. I am being treated for it. A therapist (and anti-depressants) can often be a huge asset to developing a reasonable quality of life, which we are all entitled to.

It takes TIME to figure out what works for you. Although there certainly are symptoms that many of us have in common, it can be a very unique condition. What works for one may or may not work for another.

Good luck to you!