Thread: CMT and Statins
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Old 10-20-2012, 07:26 PM
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mrsD mrsD is offline
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mrsD mrsD is offline
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mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

You have to have a genetic test to see if you have CMT.

There are drugs that will trigger CMT in people. Recently there was a paper about Levaquin triggering a patient who was genetically positive for CMT but hadn't expressed symptoms yet.

Since many people don't get the genetic testing done, for whatever reason, including its high cost, data is not available on this question.

However, we know today that statins cause neuropathy in some people. (along with alot of other serious side effects).

It is something to discuss with your doctor. You may have to go off them for 6mos to a year to see any change. There may be no change if the damage is already done. Alot depends on how long you took the statin and at what dose.

Kitt and Susanne C post regularly about their CMT. But we have had few others with a definitive diagnosis of it here, inspite of the large numbers of posters and visitors over the years. Many CMTers begin in childhood, and that may be one reason.
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"Thanks for this!" says:
Kitt (10-20-2012), Susanne C. (10-22-2012)