I have small fiber neuronopathy:ganglionopathy diagnosed after skin biopsy. In immense pain 24/7. Ivig helps relieve some of it.


QUOTE=adelina;853323]Hi! Welcome to the site! You are wonderfully educated and are very impressive!

I have been diagnosed with ganglioneuritis/ganglionopathy for three years now. I was diagnosed by a university doctor who really enjoys helping patients like us and has quite a number. But I have been told that there was no treatment for it and that it traditionally goes away on most patients within six months. I have not been that fortunate and have been only able to treat for the pain caused by it.
There is at least one other person on this site and maybe this person will be able to help you. They are much more educated than I and have gone through more testing than I for it.

Feel free to contact me anytime to talk further and again welcome here - it is a great resource for education and friendship![/QUOTE]