Hi Marie
I am so happy that you've replied. I haven't met anyone with same condition so it would be great to discuss effects and benefits of ivig - how do I PM you as I don't want to post names of hosp etc on public forum - do you go to SG hosp for Ivig?
Quote:
Originally Posted by villier
Hi Liz01 I also have a neuronopathy condition which affects sensory and autonomic nerves, I also live in Scotland it would be good if you stayed near me as I have not found anyone here with this condition, if you want to PM me I would be happy to phone you once we got to know one another............ Marie
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