Quote:
Originally Posted by RonJ
Has anyone diagnosed with CMT had rellief from their synptoms after stopping taking a statin, such as Simvastatin?
I have been on a statin for several years now, have needed a few stents implanted, and have receently been diagnosed with PN, most likely CMT.
I previously posted my symptoms
I would go off the statins only if there is a realistic possibility that they are the cause, or at least a possible contributing cause of my PN.
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From one of your other posts you said you had foot drop that was caused by a compressed nerve next in your leg next to your knee and it was taken care of via surgery.
http://neurotalk.psychcentral.com/sh...861#post923861
If you indeed have CMT, that would not be the case. AFO's help CMTers who have foot drop. You should see a neurologist who can help you as far as genetic testing which would tell you if you do indeed have a form of CMT that they now can test for. The testing is very expensive if they have to do the full panel of tests.
Also, here is a medications list for people who do have CMT.
http://www.cmtausa.org/index.php?opt...d=68&Itemid=42
As you can tell there is an uncertain or minor risk for a CMTer. There can be muscle weakness from a statin as the general population also can experience. I know of a few of those people.