Hi

I am a new member to this forum. I am a 50 year old female and have been having muscle weakness problems especially since the age of 25, but I can actually go back to giving birth to both my boys whom were both premature. One at 26 weeks and one at 30 weeks. I have had balance problems and shaky legs since I was 25, at the first onset I had a total loss of use of my legs and it was put down to being physcosymatic. (all in my mind). I have had periods since of shaky legs and hand locking. As time has progressed so have the symptoms. I have been diagnosed with fibromyalgia, but even my current family doctor doesn't agree that is what it is, the problem now is getting him to believe what I already know, and that is that I have myotonic dystrophy, I read like a text book for this disease, I have severe muscle pain, locking of hands, trouble under anaesthetic, cataracts, loss of hearing, cognitive problems, trouble speaking, sleep apnea, the list goes on and on, right now my doctor is working the racing heart problems, but because family doctors here in Ontario only work on one problem at a time I am not getting a diagnosis. My question is can anyone with this disease in the Ottawa area recommend a Neuromuscular doctor in the area that I can be referred to as I want to either confirm or deny my symptoms, I want a doctor that looks at the whole picture, and not each little piece of the whole puzzle. Can anyone out there help me with this.