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Senior Member
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Join Date: Jan 2010
Location: Illinois
Posts: 1,785
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Senior Member
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
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Thanks so much for the well wishes everyone!
As expected...the airport/flying was the most trying part of the vacation for me because there is only so much you can do when dealing with the airport, TSA, and the plane. Both O'Hare and MCO had their issues for me...some on departure, some on arrival. At both, however, I got yelled at by the TSA employee for not walking fast enough through the security area. At least the guy in Orlando apologized after I told him I was going as fast as i could and that my walker was on the other side...said he didn't realize. The woman at O'Hare however gave me a hard time after having personally giving me a hard time about my walker (made me put it up on the xray belt and then made me go back to ensure it fit through...it did). Whatever...minor annoyance that was over quickly.
The plane ride itself was (as expected) rough on me but not as bad as it could have been. I did the pre-boarding. This went better on the return flight as they actually boarded me first along with one other person in a wheelchair and helped me with my carry on. On the first flight they just let me board with the first class passengers and so I had to go through all of them (who were much faster getting on than me...several passing me in the tunnel to get onto the plane). I also had to take care of my own bag and put it in the overhead bin...all of which was difficult while trying to use a cane and get to my seat which was pretty far back. Of course...after landing I had the reverse situations. My first flight the attendent INSISTED on taking my bag for me out of the plane until I got to my walker...very nice woman. On the return flight the attendents were busy talking to one another so i was trying to get my bag out of the overhead bin before any of them noticed me. Then when they did, the woman who got it out asked if I needed help getting it out of the plane and when I said thank you, that would be great, she told me she couldn't because she had her own bag. Then I guess she noticed the cane and said she would figure it out some how. Oh well...such is life...in the end it all worked out fine and was much better than it could have been.
Disney itself was just fine. I've been many times and so knew which rides I absolutely NEEDED to skip and which ones were worth TRYING. Thankfully I only had one really bad flare the entire trip when we were at Universal for their Halloween Horror Nights event. I had ridden something earlier and it was fine but the second time I got a terrible flare in my left arm. It was the last thing we did before leaving...but it was a LONG walk to the car and since I couldn't use my left arm to push off on the walker, my ankle was in a flare by the time we got to the car and the pain in my arm had travelled from my hand to my shoulder. I was a mess. But since using tDCS (well...a couple of months in anyway) my flares rarely last longer than a day. By the next morning my hand/arm was fine and my ankle was tolerable...just took it easy...spent the day mostly eating.
Disney and Universal were both wonderful to me with the walker. I only ran into one or two minor issues with accessibility and I think that was just due to the people being new (seemed like a lot of people were going through training while we were there). Honestly...the biggest issue I encountered that I hadn't expected was using the walker on some of the uneven pavement/bricks at various parks. It looks awesome and all but the way it made the walker vibrate was painful. Once it happened a couple of times I just sought different routes (along sidewalks, through stores, etc) to avoid these areas.
Being in the large crowds was something I was afraid of but mostly it worked out. People generally gave me space because of the walker and I only had a could of instances where people walked into it or bumped it during the whole week. Having the seat (and a padded on at that) with me at all times was a godsend in some of the lines as well...not to mention the little basket to hold my drinks or whatever so I didn't need to carry a bag with me. Because of the walker, I didn't need to try and explain my condition or needs to anyone at the parks or anywhere else...it made my invisible condition visible at least to some extent.
Anyway...overall a very good trip and I look forward to my next one. Feels good to know that I can do it. I cannot forget about my condition, or ignore it and my physical needs, but so long as you go prepared and with a plan (and expectations set at the appropriate level) then it's all good. I went in knowing what my limits were and prepared for the possibility that I wouldn't be able to do everything I wanted. it was hard to see some of my favorite rides and to know I couldn't do them...but I knew it wasn't worth it to make myself miserable and cause myself so much physical pain...just have to live with fond memories of those things and be happy with all the other things I can do.
I don't think I could have done this before tDCS...that one flare would have likely put me out for the whole trip but since tDCS my flare periods have gone down substantially...lasting only a day instead of a week (assuming I treat them appropriately of course).
So...hoping for another trip in April that will go even better with my first experience under my belt. thanks again everyone for your well wishes and advice!
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