Okay....here is my success story. I was injured in a fall in March of 2006. I got "stuck" in the madness of our workmen's compensation insurance system for six months, then was released when they said there was nothing more they could do. I refused to accept the Dr.'s prognosis that I would never recover, and that I would gradually get worse. While the perineural/Tarlov cyst was apparent and noted on the first MRI, it was noted as "incidental". Follow-up with specialists around the country confirmed the presence of the Tarlov cyst at T5-6, but it was always dismissed. Even though I had been declared "permanently total disabled", there was nothing that could be done...only medications to ease my pain and symptoms.
I did a google search of tarlov late one night, and found the Tarlov Cyst Disease Foundation website. Eventually I made a connection with the staff of Dr. Frank Feigenbaum, and this is where the "success story" begins. From the date of my first contact with his office to my first "personal contact" with Dr. Feigenbaum, nearly a year had passed. During that time he reviewed my extensive medical records, then referred me to a "teaching unversity" for a complete evaluation and non-invasive treatment at their pain management center. On November 30, 2010 I was given the opportunity to once again be a productive member of society, and greet each day with joy.
During my years of disability, I lived with continual pain, thousands of muscle spasms per day, a life controlled by medication, and limited mobility. I am no longer on medication, no longer use two canes to walk, no longer experience the muscle spasms. I am back to operating my construction business, running my farm, hiking, canoeing, rafting, and enjoying life.
Yes, Tarlov cysts do cause pain and other systems. And no, the world is not flat. Slowly, the world is becoming informed.