Thank you Raven, this is just the sort of thing I was looking for! I'm sorry to hear you've had a really rough time, sounds dreadful.
I understand exactly what you are saying. The hypo weakness I know very well! And from your description I feel it is more MG than hyperT but when I was in the consultation it was all over!!
I think the consultant felt (and this is me guessing after the event, trying to rationalise it rather than having a breakdown!) that I could not show fatiguability because I was in such a state. I don't ever present well - either too ill or too well!
May I ask how they untangled your issues? And what your thyroid state is now? Do you see endo and neuro or are they the same (mine is the same guy here in the UK).
Thanks once again,
MrsC
Quote:
Originally Posted by RavenC
Hi, I have experienced both MG and thyroid weakness.
Hypo and hyper thyroid weakness, the hyper first because of Graves, later because of too much t3.
A very simple description ( my own, not scientificly or something):
Hypo thyroid weakness: heavy feeling, feel slow and cold. Everthing just feels slow; bowels, thoughts, bloodstream, heartrate, everything.
Hyper thyroid weakness: a weakness that feels like it is caused by overdoing it. Like i've run a marathon without any training. But also other things like anxiety, heartrate even in bed over 120, etc. It is more an overall weakness.
MG weakness: overall weakness, combined with typical weakness: when I think about it, I can say: my weakness is now most severe here and here. For example: now it is more my breathingmuscles and neck. This morning it was mor my mounth and hands, etc.
So with thyroid caused weakness my weakness was never the first or most obvious symptom, wereas with MG it is. With the thyroid it was just like an overall over- or underload. So with co-excisting symptoms.
The same with reumatoid muscleweakness: it is more an overall weakness and not my first, most prominent symptom.
However, since you have more AI diseases, they really need to look into this...
Anyway, my worst weakness is defenitly with MG, so too extreme to be MG is the most retarted thing. I mean, it means severe weakness.... It's in the name! The thyroid weakness (and my thyroidproblems were so severe I had to be admitted, had cardiac arrest, and my bloodtest were too high and too low to be measured even) never caused me to need breathingsupport.
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