Thread: CMT and Statins
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Old 10-22-2012, 06:47 AM
Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
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Quote:
Originally Posted by mrsD View Post

Kitt and Susanne C post regularly about their CMT. But we have had few others with a definitive diagnosis of it here, inspite of the large numbers of posters and visitors over the years. Many CMTers begin in childhood, and that may be one reason.
I have had symptoms since childhood/adolescence, which went unnoticed because I was largely neglected as a child and had no contact with my biological father's family, from whom I inherited the CMT. I have a half sister who has worn braces since childhood for it. I could not run, roller or ice skate, dance, or even play kickball or simple ball games because of my lack of coordination. I was made fun of at school and called lazy by my mother. When I was diagnosed, and my childhood was a big factor in that, it explained so mny things. I actually felt better about myself. I wasn't too lazy to do all those things, I couldn't do them.
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"Thanks for this!" says:
mrsD (10-22-2012)