Thank you everyone! We decided to NOT continue with the aggressive PT approach.
It's so difficult watching your child in tremendous pain and not be able to help.
We have a fabulous Orthopaedic Surgeon in Annandale (for the Fairfax member) who has experience with CRPS/RSD/RND - she has worked with many service members who develop the disease. Unfortunately still having trouble finding therapists who have experience in the pediatric form.
Regarding the ultrasound - that's interesting because my daughter's OS mentioned ultrasound at her appt on Fri. I asked about Calmare and she said there are a lot of studies being done on electrical stimulation and u/s in veterans. I'll look into that more.
I appreciate all of the advice and support. Many days as parents we just feel lost.