Originally Posted by Sallysblooms

For me, I had a couple of episodes in the grocery store. My hubby went to get the car and I saw sitting at the door unable to walk and he kept driving around the parking lot wondering why I didn't come out. ha We had no idea what this was yet. Finally I was able to make it to the car as he drove up again.

I was unable to stand when I was at the vet once. Thought I would pass out. That was very odd. I thought I must be nervous, but I have taken pets to the vet many times.

Then on my anniversary, we went out to buy a ring I wanted and that night everything stopped working. I could barely walk to the bathroom...All of those horrible symptoms of the failed autonomic nervous system.

Horribly dizzy and lightheaded. Unable to sit, but even in bed, I felt the same.

If you have this, it is possible it can get worse, but everyone is VERY different.

Yes, several times I got so ill, it felt the same. Then, a couple months later everything failed. There was not one second that I felt ok for years.

You should get a bp monitor and keep track of it. Might help the doctor. Some people do get the Holter monitors, yes. I hope you can get help soon. For now, drink a lot of water. It is the first thing a doctor should tell you since there is a lot of pooling of blood and that can't hurt to do of course.