Originally Posted by ginnie

I am sorry you are going through all this with RSD. The other post is correct, there are things that help. Some people have Katemine infusions, which I have heard worked for them. Please seek out specialist that deals alot with RSD. Many doctors who confront it don't know that much about it to start with. If you post where you are located, perhaps one of our members will help guide you to the approiate type of physician. In my own case I go see a physiatrist. She deals with pain, and the whole person at a cellular level. Often this type of physician, knows about RSD and can help you better. I have RSD or PN in my left foot and ankle. I use a cream, which feels awful to rub in because of sensitivity, but over the course of the next six hours I am very numb, to the burning and pain. I can post the ingrediants if you want, and you can ask your doctor. It is a compound, and for me it helps in conjunction with low dose narcotic. I wish you all the best in this. I know that trying to hide this kind of pain is most difficult. Maybe you should level with your family, so they can provide some of the comfort, compassion, and help they can give you. As humans we don't know all the time, how we react to things, until it presents. Allow your wife, and the kids to help you through this. We all need each other. I will keep you in my thoughts and prayers. always glad to talk to you too. Neuro talk will be there for you. ginnie