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Originally Posted by RonJ
I read on another site that someone who stated that he had CMT claims to have "cured" it with large does of vitamins E, C and CO-Q1O,
What do you folks think?
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I do not know what curing it would involve. Did he claim to regrow wasted muscle tissue? This disease is highly idiosyncratic and is different for everyone, even in the same family. It can go into remission where nothing changes for a while, and then hit you with a sudden increase in pain and decrease in strength. I feel that everyone who makes outlandish claims of being "cured", or talks a lot about having CMT without any life-affecting symptoms reduces the credibility of those of us who are suffering pain and disability from the disease.