Hello, and welcome to Neuro Talk. You will find some friends here, and some compassion. Definately see a neurologist. Some of the things you are experiencing must be very scarry. Anytime developement in the body is affected, with pain, is reason to really have an investigational medical review. You can post where you live near, and perhaps there will be some folks, willing to tell you of good Neurologist they have seen. It took me several different doctors myself, to find the one able to help. Neuro Talk will be here to support you. Keep in touch, and make the appointment. Be good to yourself. ginnie