Thread: CMT and Statins
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Old 10-23-2012, 07:50 PM
Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
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10 yr Member
Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
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That is very frustrating, but I understand. Your neurologists are right about the testing, it is expensive and there are not tests for all variants, so can be inconclusive. I refused the testing as well, with the blessings of my doctors. Idiopathic PN is a frustrating diagnosis, it tells you nothing. CMT is progressive and incurable, but gives you something definite to refer to.
Were there things in your family history or childhood/adolescence that supported a diagnosis of CMT?
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