I really hope alot of folks respond to you. I can tell you that a teaching hospital is sometimes the best place to go. After two failed attempts at a good neurologist, I found Dr. Kevan Boyer, in Bradenton Florida. He may be the smartest doctor I have ever found. If you came this way, which is a long way from California, his assistant nurse is a gouch, which is an understatemet. He did for me, what others could not do. He is a neurologist/surgeon, with a reputation that goes beyond this state. He also has compassion, and the nicest disposition of any physician I have found to date. It is worth a consideration. I did go to Mayo clinic years ago in MN. Got a DX from there, and directions for future help. They are noted for their ability to accurately dx. Many people on this site have PCS, and will help you too. I wish you all the best, and hope you receive the help you need. ginnie