Hey sweetie..

firstly - it is rough as hell to get this at any time of your life - but I really think that getting it as a teen REALLY REALLY sucks - I also got mine at 16 - and dealing with normal teenage stuff and being RSD'd is hell. Pure Hell.

BUT, you can get through it. You say that you are worried this may be permanent - but it doesn't necessarily mean that your symptoms and pain levels will continue at this level. I know teens with this who have had a year of horrendous symptoms and nowadays, though they still have RSD and some level of pain they can function almost normally.. they just have to be more careful than "normal" people and avoid certain sports. Even with me, I am still on the "severe" end of the spectrum and you know how many RSD/ physical problems I have still have an increased quality of life than I had a couple of years ago. I am lucky to have been able to work holistically to mean I can study, go to uni and survive it!! (most of the time).

I am really glad the pool therapy is helping - stick with and aim for small improvements instead of an amazing huge recovery - could you set yourself a target to reach at the end of a week? even if it was only a tiny thing like being able to stand for another minute or be able to pour a kettle on your own etc... it's motivating when you discover that you can do stuff that previously you couldn't.

Migraines --> are the meds helping? During it what happens to your vision? I was talking about this with someone else i know with RSD and we have some suspicions that there is a form of RSD migraines. Mine drive me mad! hate the whole lying flat, silence, darkness thing.

Glad you are going to see the neuro! sorry can't be much help with the TOS....

I had more to add but can't think

how about tubigrip instead of compression stockings? I can't handle compressions stockings but I did wear tubigrip to reduce th swellings. I am not sure your doctor is being sensible about the shoes. Make sure that you soak the tubigrip/ compression stockings in conditioner over night (hand wash). Also, put them on in bed - because it will be easier and less painful (especially if you have elevated your legs over night)

Loads of Love and stick with it!!!!
Froggsy xxxxxxxxxxxxxxxxxxxxxxxxx