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Thanks, Roz, for your kind words.
No, I haven't had a CT scan. They did an MRI in late spring - that's what showed the spinal stenosis, my spinal cord is pinched in just like an egg timer, and the amount of space for it to pass through from C4-C6 is almost nonexistent. Very alarming.
Apart from permanent headaches and severe stiff neck, I just feel all the time as if I'd like to take my head off, it's so heavy! I think I'm in for the long haul here, but to my surprise exercise does help quite a lot.
I'm also doing the "tucking in the neck" thing, doc says I'm beginning to get a turtle neck.
I really don't like taking meds, so I'm on small doses of neurontin which helps the RSD arm. But I'm taking too many cafergot - supposed to be for migraine and you shouldn't take too many, but I can't get through a day (or night) without them. Gotta find a solution to that.
Thanks for the link; I'm scared of steroids..and blocks...but it may come to that.
Still, to all intents and purposes I look OK, function relatively OK..it's just all so damn painful!
Anyway, I like this new forum, it's got some really interesting and funny characters in it, and I'm enjoying seeing it sort itself out. When/if BT1 returns I shall be with both.
As someone else in the forum said - it never hurts to have a spare!
You never said if you moved to that cabin? Did you?
hugs,
all the best
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