I am sorry the pain is so Bad. You are in Florida. I go to a fantastic Neruologist. His name is Dr. Kevan Boyer, in Bradenton Florida. He not only is extremely intelligent, he has compassion. His nurse on the other hand, is crabby all the time. I am not sure of the protocal to get into seeing him, and if you need a doctors referral or not. It may be worth it to call his office to see how he does things. 941-750-0602. I also go to the best doctor I have ever met to deal with pain. Dr. Emese Simon On Robinhood lane in Sarasota. She is a physiatrist/ and a pain specialist. She has helped me alot, even though I don't have the same conditions as you do. Maybe it would be worth the drive to seek out these physicians. It is usually by word of mouth that you find the best doctors anyway. I hope that you can find a resolution. Nobody wants to suffer like that. I wish you all the best. ginnie