Yes, I did talk to the doctor when I dropped one of my pain killers. Spoke about the what if's about SSD. She said she would continue with another medication, and that working would not be an option for me. She knew I was afraid to stop a medication as SSD would consider that getting "better"
My neck is fused, I can't look up or down, with or without meds. Even typing Can't look down at the keyboard to type etc. I think as long as the origional condition is there, and there is no hope of recovery, that SSD will continue your benefits. The problem I see, is they look for any old excuse, to get you off the rolls, as this system is broken, not solvent financially. This is a problem for all of us with permanent conditions. I agree, keep all records, and a chart of the symptoms you experience. I didn't know the Lingo for SSD, so thank you for that information. ginnie