Yep, as the others have already said, none of us are "ok" with this constant pain. We just each learn how to deal with it and how to keep going. I am currently seeing a counselor, which helps greatly to talk to someone other than my husband, family or friends. My husband is incredibly supportive, helpful and empathetic (I am very lucky in that respect), but he can only help me to a point.

I have been suffering with this for 21 years now. I was 25 when first diagnosed and now it has spread quite a bit. The good thing now vs. 21 years ago is that there is more information out there about it and there is support.

I am struggling with this myself, more lately since new spreads. But I find comfort in the fact that I am not alone in this journey and there is support here and at home for me.

All the best,
Nanc