Hi all, my communications are crap at the moment but I had to share what may be my little window of optimism.

My gp gave me a referral to physiotherapy as I have been getting a lot of pain around my left knee aka my good leg! I finally had my assessment yesterday and the guy was great. He knew very little about pcs but took the time to listen to me stumble along explaining it.

He asked lots of relevant questions relating to signs, symptoms and how it all impacts on my life. He ran the usual stand on one leg and resistance tests and confirmed that had lost a lot of muscle control and stability in my left leg since the blow to the right side of my head.

He has been very proactive since my assessment yesterday in finding out the best team to help me. He is going to work with me weekly to attempt to get my muscles working together while we wait for the acquired brain injury rehab team to take me on.

I wanted to share this to recommend that people take up physio referrals and also psychiatric referrals. Even if you feel it has nothing to do with what is going on with your symptoms these other professionals can often assist by advocating on your behalf that these symptoms are more likely to be neurological in origin rather than structural or mental. This then helps to build a body of evidence on your behalf about what this condition is not, and gets you referrals back into the neuro teams from many different angles.