Hi All

Saw the neuro-opthamologist on April 5. Again a bit of a disappointment as his office is airconditioned and I had been in there almost an hour by the time he did the ice test on my eye. The ice test was negative. He also states that facial power is intact, that in spite of the fact that I can no longer whistle and chewing gum and talking for any length of time made my jaw ache.

I wish doctors would realise that when we are in a temperature of less than 24 degrees centigrade and sitting fairly idle for nearly an hour, we are not going to manifest too many MG symptoms.

Below is the last paragraph from the report he sent back to my husband's GP whom I was seeing as my GP was away. The opthamologist actually asked him to trial me on Mestinon buthe didn't want to, only gave me a referral back to the first neurologist for EMG test which I am having done on Monday April 30.

She has evidence of upper right lid ptosis. The findings are not consistent with myasthenia gravis however I have advised her that this condition can be difficult to exclude. I would not recommend intervention regarding the lid ptosis until a diagnosis is made or the lid status remains stable. I have suggested consideration for EMG studies if these have not been undertaken and consideration of a trial of pyridostigmine. However these factors may already have been considered by the neurologists.

When my GP came back I went to see him as I didn't think I would be able to cope until I had the EMG done, and he decided to trial me on Mestinon 10mg 2times a day. I am now taking 30mg twice a day

That nearly 2 weeks ago, then had trouble sourcing the tablets until I managed to find some a couple of days later at a pharmacy in Brisbane some 120km away. Anyway within 30 minutes of taking a tablet I was able to walk briskly back to the car.

I have read that Mestinon should be stopped before an EMG test and I wonder when I should stop taking it? Is there anything else I can do beforehand to make sure that I get a positive result this time.

Regards
cinusti