As Mrs.D has told us, Dr. Cohen suffers from EM himself and in the recent "FootSteps" newsletter, he wrote an article about his own treatments. Phosphatidylcholine (PC), a nataural supplement he gets from Bodybio.com or Millerpharmacal.com--but cautions not to get the ones based on soy as they do not work. He also suggested Alpha lipoic acid, and said you could use up to 1200 mg/day in divided doses; and to avoid R-ALA. (This surprised me because it is one of the supplements frequently recommended here for pn.) He suggested black cohosh, an herb used for hot flashes in menopausal women.

But the thing that helps him the most is Sandomigran (pizotifen), an antihistamine and anti-serotonin drug from Canada. He says it is similar to cyproheptadine (Periactin) which only helped him a little.

He also said there is nothing that will help everyone as we are all different, and our disorders may look similar, but the underlying physiology varies greatly from person to person. He said to try many things and discard the ones that don't work. He has a website, MedicationSense.com . He is chairman of the TEA Medical Advisory Committee.