He didn't explain his reasoning about R-ALA--just said, "avoid R-ALA," after his comment about using up to 1200 mg/da of ALA.

I couldn't pull up the miller pharmacal site for some reason--I did get the other one, and it is expensive. I-herb didn't have it. I've read before that people who are hypo-thyroid should avoid soy, so maybe it has something to do with that rationale. ???

Cyproheptadine is the one that he said "helped him slightly." He did say that none of these things or other treatments will help everyone with EM. He also said there were 2 medical journal reports on these drugs, cyproheptadine and sandomigran, helping people with EM, including those in a family with familial EM. He suggested patients find a physician who is interested in them and willing to follow the guidelines available at TEA and also his website since there are so few doctors who know how to treat EM. He will schedule calls for a reasonable fee, according to his website.

EM and pn are not the same, but similar. I don't know what the differences really are or if pn people would benefit from the things he's found that help his symptoms. So many of the treatments are trial and error for all of us.