Have you looked into the Sacramento Pain Clinic? I have heard that they have good experience in CRPS patients.
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Originally Posted by sshatz
I live by Sacramento, my 20 yr old daughter has had RSD/CRPS for more than 3 years. We have tried numerous things. UCD got angry with us and sent us to the psych ward when Melanies pain was so bad, after they injected her back and ended up hitting her thigh and not the knee. Her knee pain rules our lives. Heat, Cold, touch, breeze, all things are painful. People who are rude and trip her at school, and people who think she's slow because of the drugs (Methodone, methocarbomal, norco, percocet) she has to take daily to just cope. I am unhappy with these medications as a whole, but I am less worried about addiction than i am having to go to the ER 2 times a week for pain. She's done every protocol the drs have given us including PT 4 times.
I want a miracle for all of us, but more than that I want a doctor that knows what to do about this disease. Mel thinks its spreading and hysteria is a daily occurrance. I want a new doctor for my daughter. Anyone who could help us , thank you. We need help.
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