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Old 10-27-2012, 10:22 AM
denik258 denik258 is offline
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Join Date: Jul 2012
Posts: 13
10 yr Member
denik258 denik258 is offline
Junior Member
 
Join Date: Jul 2012
Posts: 13
10 yr Member
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Quote:
Originally Posted by Spike View Post
I thought I'd post what is working for me after about 2.5 years of treatment since my symptoms are recently pretty much in remission. When I got my dx I wasn't able to walk more than a block at a time. Now I can walk about 5mi/day (I was an ultra-marathon runner pre-MG):

Prednisone 20mg/day (down from 60mg)
CellCept 1000mg morning 1000g evening
Mestinon 60mg in the morning (I've stopped using the rest of the day since the symptoms are gone but it very helpful before)
IVIG 1/week

The IVIG is hideously expensive, but it's worked!
Congratulations! I am a runner that has had to give it up yet again. I was never a marathoner, but had worked back up to 3 to 4 miles. I am hoping to have success with the Prednisone so I can once again run.
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