I read your story , and truly relate to the journey. There is no simple answer to it, or a simple solution. My dystonia is generalized, and its everywhere, I have tried everything that the movement neurologist has offered. Attend support groups if there any in your area, contact American Dystonia Association, they have good web advice as well as information that they can send you. I have provided people who help me these little pamphlets, which are excellent and describe the communication of the muscle and the brain. Know you aren't alone. Keep yourself as strong as you can. Keep trying, don't let things that don't work for you but others frustrate you. Wishing you help, and also a continued positive attitude.