I agree with Jana.

From personal experience and research, I have learned that Mestinon does not work for symptoms, e.g., eye droop (ptosis) and muscle weakness - unless these symptoms are from MG.

But who knows? I have read that it was given to soldiers to protect them from nerve gas in Operation Desert Storm.....

In my opinion, I think your dosage of 30 mg is a little weak; 60 mg every 3-4 hours seems to be what most MG patients are prescribed. (This is my RX.) But perhaps your doctor is being conservative with his initial prescription for you - because, please be aware, that sometimes if one takes too much mestinon - MG symptoms can exacerbated. I have had that happen - once.

Don't be afraid of mestinon - if it is working for you, you will learn to listen to your body and - generally know when you need it.

My eye-droop (ptosis) also gets better (for a couple of minutes) - with the "Ice Test". I have read and was told by my neuro-opth doc that this only works with people with MG. This GREAT doctor performed this test on me before he sent me on for Tensilon, blood tests and SFEMG.

Tensilon test was positive. I am sero-negative (blood test) - with positive SFEMG.

Unfortunately, I have had to use prednisone for my double vision issues. Agreed, Jana, that prednisone is something one has to think about VERY carefully before using. My dosages have changed during MG treatment. (I cannot use Imuran)

Hang in there - diagnosing MG can be a long process. As it can be for other illnesses and conditions.

SoftTalker

p.s. Jana you sound pretty smart to me.

And as to your "better memory" statement - I betcha that would be a great topic for another thread.

SoftTalker