Quote:
Originally Posted by LindaD88
I would rather be dead than have this, sorry folks, but the whole thing sucks, and no one in my family gives a rats **** if i live or die, oh well, lying there, they want me to go to work coz hubby doesnt work. He said he doesnt care about my pain, he doesnt care if i have pain. And right now, i dont care either, coz i just want to take more and more drugs till i cant feel the pain in my body. Is that weird, or is that normal? the whole thing stinks, and i hate it, i hate the tiredness, i hate the pain and i hate not feeling normal anymore. Good luck to all of you who still feel ok. I will probably not see this posted, i guess i am feeling pretty bad today. i guess that is normal too, good and bad days, but i have to go back to work full time and put on the bright smile and yeah sure, all great, and yeah i am doing wonderful, and really i just want to scream and shout that this stinks and i hate it, and i hate my husband for not caring, and my daughters never ask me either ... so i was only diagnosed a few weeks ago and already no one cares a **** what happens, i hve to suck it up princess, put on the bright face... i dont want to.
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I am so very sorry that you are going through such a hard time -- I turn to this support group when my pain and emotional distress are so much I can't feel like I can go on - and then there is someone out there who maybe I can help, and to be honest is in worse shape than I am. I've had this crap for over 12 years now and am always so very tired and drugged and bored because my life is so limited. I know I am depressed and am trying some new meds for that -- but also have the lack of support from family -- that is the hardest part of all. NO ONE understands - everyone is sick of it after all these years -- and my husband has his own issues and the stress of that just sends me off the roof in pain. My feet burn burn burn and the rest of my body does now too. When the stress is high it is impossible for me to control the pain -- but how do you eliminate stress in these days?? I do know that you can't give up and that the Lord loves us and will help us through the hardest of all days for sure. If I didn't have my faith I couldn't do this at all. Please remember that this is an up and down thing and this is a down for you and I -- two weeks ago I was in Boston on a trip! Now I can't even get it together to go to the store. The emotional part of it is the hardest part for me.
On a lighter note -- I used to live in Glen Waverly (Australia) I LOVED it there. I am back in the states now, but that is a great memory for me. Come here often and lean on all of us when you are struggling - sometimes we just need to vent!