Hi - My name is Jude and i found this site a few days ago .
My nightmare started 5 yrs ago after being on Lipitpr ,Crestor and Simvastatin for years .
I just woke up one morning with a feeling of "creepy crawlies " under my skin but everywhere from head to toe ,also thigh muscles jumping/twitching and poor mobility ,walking like a 90 yr old . Eventually after extensive research i realised that the symptoms could be due to statin side effects ( i am a nurse so surprised it took me so long to figure it out ).I had numerous visits to GP who had no idea what it was and after about 2 yrs sent me to Neurologist .Interestingly my CK levels where elevated but no-one took any notice. The neurologist diagnosed PN but clearly was,nt really interested in my case , he told me "a good neurologist would,nt get out of bed for a CK at my level (375)and "to live with it ". I am on Pregabalin 100mgs tds but still have symptoms although not as severe as they where. I do believe the damage done is permanent and all i can do is continue the meds ,including , q10 etc and celebrate the good days .