Originally Posted by bny806

Thank yall so very much.. I am finally recovering from the bug, and my strength seems to be returning slowly.. I had a few days where it felt like I had concrete in my shoes and arms, and throat!

I have an apt with my neuro on tuesday- i am SOOOO nervous.. as I don't have a firm diagnosis, I always fear they are going to tell me something awful!

Do yalls lungs ever feel like they haven't expanded enough at nighttime.. When I wake up in the mornings I feel like I haven't breathed deeply all night long.. it has felt like this for over a year.. though after my 1st few rounds of IVIG I was all better for many months until the recent cold I had.. I have pulmonary function testing this week too . just curious if yall have that sensation during exacerbations