KellyAnn, Do you have muscular pain? Have you spoken to your primary doctor about it?

I have a chronically low to lower Vitamin D. I supplement D3 three times a day due to that. That's one cause of muscle pain. There are many others, including a steroid myopathy for those who've taken steroids a long time.

So it's always good to figure out WHY you have pain first because the treatments vary.

Pain is not a primary symptom of MG but it is a vicious secondary symptom! Think about it. What happens when athletes push muscles too far? They twitch, cramp and spasm. For MGers, that just happens more quickly. Like right now, my right arm is pretty weak and there is pain in my bicep. You might start to see a pattern of pain depending upon which muscles you use more often.

The back is one of the worst places to get weak. When the chest wall muscles get weak, besides making it harder to breathe, they throw off the spine. Then muscles can get so weak that you get tight spots in the muscle tissue. Massaging out those spots can really help make things better. A good physical therapist can show you how to nip that stuff in the bud so that it doesn't progress to the point where you can't even stand. I've been there and it's not fun!

Pain can also be from a lack of calcium or other electrolytes (or too much of them). Or a buildup of lactate.

Maybe when a doctor tells you that MG doesn't cause pain, you can very gently explain why it in fact does. Our entire skeleton needs strong muscles to work well. Otherwise we'd fall over like a rag doll. Oh, yeah, we do that too sometimes!

Annie