Quote:
Originally Posted by Anacrusis
Thatīs precisely it. Three weeks ago was the first time during one of the few hour bouts of restrictive breathing that I actually thought that I might soon have problems breathing on my own. At the time I had bad double vision as well as micro aspiration problems. Mestinon fixed the breathing and the double vision. Since then Iīve felt that breathing muscles are back on auto pilot again and a 2 months spell of coughing appears to be over.
If I fly to another country to see a pulmonary specialist will anything show up on the tests if the appointment ends up coinciding with a remission like we all know can sometimes happen?
Thanks, as always.....
Anacrusis
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Anacrusis,
I am not a medical person. Just a person who has had MG for about 10 years and have been hospitalized for two MG crises and aspiration pneumonia due to MG.
Of course, my pulmonary specialist "saw" much when I had the above issues. And my follow-up appointments with him following my recoveries must have "showed" him some things.
It has been three years since I have seen this specialist. The last time I saw him he said I did not need to come back unless I was sick again or another doc thought I needed to.
My neuro, endo, and internal med docs all "listen" to my lungs when I go to appointments. Internal med took x-ray a year ago when he thought I may have had pneumonia. They all say I sound "good" - except when I had the "possible pneumonia" - which sounded like a "rattle" to the inernal med doc and did not feel "heavy" to me. (I had bronchitis)
Am I in total remission? No.
Do still have occasional breathing problems? Yes.
Would my pulmonary doc "hear" something different today - now that I am not in crisis but still have MG? I don't know. He may not - because currently I am not having severe breathing problems. But I still have MG.
Anacrusis, as you know, I am new to this group - not new to MG.
Why would you fly out of the country to see a specialist right now? Just wondering. In my non-professional opinion if you are not having symptoms when you see him - he may not "see" anything.
A new Inquiring Mind would like to know. (new member)
p.s. Cold weather helps my breathing also. Although I do not live in zero degree weather.
In fact, one time a doc told me (I forget which one) that if I was having breathing problems - to try stepping outside into the cold weather. It did help. That was not however, when I had my crisis. And I believe I was too weak and too ill at those times to even (remember) or (think) about doing that.