Quote:
Originally Posted by Anacrusis
.....Because when you have back problems you go to a chiropractor, when you have vision problems you go to an optician, when you have toothache – the dentist.
When you have fluctuating breathing problems like the following who do you go to?
• Periods of 4 hours where breathing muscles feel like they´ve lost their elasticity and diaphragm is moving like 2 wood planks together
• Fluctuating voice changes
• Saliva is leaking into lungs with 11 months of coughing then a stretch of 2 months of coughing
• Small particles of food stuck in esophagus for up to one hour
• Choking on vapors and last week the cappuccino powder!
Etc etc etc etc.
Well I think I´m done with it all since a couple of weeks – wouldn´t that be so lovely?
But if those symptoms do come back I would like to know what my chances are at a pulmonary specialists in case I did get my timing with my unpredictable fluctuations all wrong. I´d have to start somewhere. But yes I see what you´re saying about this in your post!
Thanks for the great description and for sharing. Also I did not know the rattling in the lungs that I´ve had too was a ´valid´ symptom - until just now!
Anacrusis
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Thanks Anacrusis for the explanation.
After reading your response - perhaps a pulmonary specialist would have insight (even greater than other physicians) into your problems - regardless of where exactly your MG symptoms might fall on the "spectrum".
I missed or mis-read Alice_MD's response. Alice is the MG patient and a medical professional (MD). Between your response and her response - well, I agree this is truly strong possibly and a big decision for you to make.
Anacrusis, the "rattle" in my lungs the doc thought he had heard - was a "possible" pneumonia sign - so my doc had to check it out. My doc seems to be very careful with me - since seeing me so ill at times with MG.
Wish had better answer(s) for you. Good luck.
Soft Hugs from SoftTalker