Yes! Didn´t you know?!!!!

Today I received the message from the hospital neuro …..that Mestinon helps alleviate general fatigue in lots of people so just keep taking whatever you are taking until your neuro appointment in February next year. That neuro was responding to my symptoms which at the time of referral were mostly bulbar and respiratory but I´ve never even met him.

Don´t want to mention the country I live in as it´s a fantastic healthcare system in so many areas. But the minute you present with vague, chronic myasthenic symptoms and a negative SFEMG then you clash with the core medical approach of the handful of neuros running the show in the entire country!! (an example of the choices we have: when I happened to look up pulmonologists in one town in America there were 300 yet here there were none!)

Just as well I´m feeling much better – what a stroke of luck! Luck is better than nothing. A complete remission might even help me appreciate this great ´free´ healthcare system that we have much much more than I already do,

Annie – this really does make sense and that was certainly what I was working towards.....


But now, instead of finding allegiances/making progress/working with the public health system I think I may get somewhere faster by sticking around here and working with my own favorite icons….


´Oh neuro, good neuro – wherefore art thou good neuro?´


As the only one I know is:

On the beach

Having a lie in…....

Or perhaps awake and working on his cognitive skills....

Trying to win the Grand National....

Doing a spot of fencing......

Learning how to sail......

Learning to tightrope walk.......

Maybe even learning to do the salsa.......

When he has some free time he is sitting at his desk.......

Jumping to conclusions.......


Thank you kindly for listening! I just needed to vent about the system rather than my own symptoms at this present moment.

Anacrusis