You're on drugs to make MG disappear (right?) so it's hard to say if the RNS, which is not as sensitive as the SFEMG, will show something or not.

An MGer can test positive on one test and not on another - or positive on both. Or neither.

The SFEMG is more specific to MG but a positive result on any test is weighed along with the clinical exam. MG is a clinical diagnosis backed up with tests.

In people who have had more than one neuromuscular problem, it's harder to discern what's what, especially if your neuro is not an MG expert. That expertise does come in handy with more difficult to determine cases!

And no one can tell by "looking" if someone is weak! Oy. With MG, we get weaker the more we do which is why some doctors do exercise EMG's or longer clinical exams. They should really put us in a sauna and then have us go up a couple flights of stairs before they examine us.

And you can't compare ALS and MG. They're completely different. ALS is progressive weakness (to a point) and MG is fluctuating weakness. Some patients with ALS can respond temporarily to Mestinon and can confuse the diagnostic process. We can at least try not to die, which I really wish were the same for ALS patients!

Why not have the test and see? A negative test, however, does not prove anything. A negative does not prove a positive. So if it's negative and your docs throw their hands in the air, you can say it doesn't prove anything, especially since you are on drugs that can make the disease "disappear!"


Annie