Well I must need a course in better googling AND on being a more assertive patient. When my doc told me in all earnestness that there weren´t any private ones in the country and the ones that work in the hospital are reserved for cancer patients, I believed him. It is so hard to be assertive when your symptoms are vague AND fluctuating. Either way, if the pulmonologists have the same approach to breathing as the neuro has to myasthenic weakness then I´m in BIG trouble ......Also it is unlikely I will get a referral here without a more dramatic symptom presentation.

I will PM you about this.

I do have a recommendation for an excellent one in a neighboring country
The more I think about it the more I am convinced that at least I would have a trustworthy solid base from which to start with.
And after all these years of mediocre investigation whilst symptoms have had time to spread further, I really really do deserve at least that much.


Have a lovely day

A.