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Old 11-01-2012, 08:58 PM
bny806 bny806 is offline
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Join Date: Nov 2011
Posts: 576
10 yr Member
bny806 bny806 is offline
Member
 
Join Date: Nov 2011
Posts: 576
10 yr Member
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Thank you so much Annie..... I hadn't even thought of that.. I will be at the end of the 2 week mark from IVIG when the test is scheduled.. I am 3 weeks out now.. which is the longest i've gone in a long time, and I am getting Floppy all over, difficulty swallowing and a droopy face etc.... I wonder if that will cause it to be false negative (if it even would be positive in the first place)...

I have never heard that ALS could respond to mestinon at all.. that's interesting.. What I have defintely fluctuates.. and it completely went away with the 2nd round of IVIG... but after that one wore off, I have symptoms most of the time.. though not first thing in the morning..

As far as the sauna thing goes - seriously, that would be perfect! I go outside here in August and I literally melt- my husband couldnt' believe how my face changed, and extending my IVIG out showers are getting hard on me!
Thanks again so much for your help!! I'll let ya know how it goes!
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